Nothing But My Version of Ordinary

I have a morbid fascination with fundamentalism. I went to a "Fundamental Bible Church" in high school that was largely responsible for me avoiding church like the plague for most of my adult years. My younger siblings have all been homeschooled; I'm the only one out of the bunch to have graduated from a public high school.

Having lived amongst all of that for a few years, there are varying degrees of  fundamentalists. There are those who live a relatively normal life that are just more conservative in their theology and their politics, there are those that my family has called the "long skirt brigade", and every shade in between. The "long skirt brigade" tends to be the ones in the ankle-length skirts or jumpers, long hair, no makeup, and frumpy tops. They adhere to a strict patriarchal world view. Many of them practice courtship, with some groups going so far as to say that single adult children should remain under their parent's authority until marriage. A semi-famous preacher of that school of thought is Bill Gothard of the Institute for Basic Life Principles (http://www.iblp.com/).

If you've heard of the Duggars, you've heard of a "Gothardite" family. The Duggars link to IBLP materials on their website, and are also a part of the Quiverfull movement. The Quiverfull movement (http://www.quiverfull.com/) is of the belief that children are a blessing from God, so therefore a couple should have as many or as few as God decides to give them. The name of the movement comes from Psalm 127 3-5, which says "Lo, children are a heritage of the Lord, and the fruit of the womb is His reward. Happy is the man who has his quiver full of them..." Birth control and fertility treatments are not to be practiced by a Quiverfull family, because to do so would take control of family size out of God's hands according to Quiverfull teachings.

Knowing about all of this, I decided to do some Googling tonight on the subject. It's very interesting to read the point of view of Quiverfull practitioners. They believe that a couple should be open to as many children as God chooses to give them. Sounds great on a surface level, doesn't it? Give control of your family size over to God, and show the ultimate faith. The Quiverfull movement neglects to address the very real spectre that until recently hung over every pregnancy and birth: that of complications, the death of mother and/or child, or birth defects.

I have strong feelings about a movement that would declare a couple sinful for choosing to stop bearing children because the health of the mother was at stake. I wonder about a theological position that would have a couple continue to concieve children even after they know that they have a high risk for repeatedly giving birth to children with fatal birth defects or degenerative diseases. I would never, ever tell a couple that they should avoid having children for those reasons, but to tell a couple that they are sinful because they choose NOT to continue having children for those reasons is reprehensible.

I have to wonder what a member of the Quiverfull movement would have to say to Jacob and I. We've decided that the next baby will most likely be our last, unless we end up with an "oopsie". Our reasoning has less to do with the number of children we want or don't want and more to do with our risk of having another heart baby. Recent studies have shown that HLHS is highly heritable; our risk of having another HLHS baby is 8%, while our risk of having another baby with an HLHS-related heart defect is a staggering 22% (http://www.news-medical.net/news/2007/10/11/31066.aspx). We've chosen to take the risk one more time so that Grant can grow up with a sibling, but we feel that more than that is like playing Russian Roulette with a four cylander revolver. After watching Kenneth go through everything he went through, the thought of doing it all over again is simply terrifying.

What would the people of the Quiverfull movement have to say to us, I wonder? Would they understand our decision, or would it be met with judgement and prayerful derision?

It would be interesting to find out.

Good news: Little Adalyn had her surgery to repair her Congenital Diaphragmatic Hernia yesterday. So far she's doing well. Her biggest hurdle is her lungs. CDH makes it so all of her organs were up in her chest cavity, which restricted the amount of growth her lungs could do. Continued prayers that Ady's lungs will be able to do their job would be greatly appreciated.

I met with the voice specialist on Monday. He went over my test results with me, and they were well outside of normal limits even though I did the PH probe while still taking my reflux meds twice a day as ordered. He said that since they're not working, he wanted to refer me onward to a surgeon to have the Nissen Fundoplication done. According to http://www.umm.edu/general_surgery/nissen_fundo.htm, this is what they'll be doing:

"During the fundoplication surgery, the surgeon improves the natural barrier between the stomach and the esophagus by wrapping a part of the stomach known as the gastric fundus around the lower esophagus. This prevents the flow of acids from the stomach into the esophagus, and strengthens the valve between the esophagus and stomach, which stops acid from backing up into the esophagus as easily. This procedure is often done using a laparoscopic surgical technique. It can also be done as traditional (open) surgery."

From my reading, the surgery itself isn't the difficult part, it's eating afterwards. I'll be in the hospital for 1-3 nights depending on how things go. I'll be on a liquid diet to start and then very gradually increase the thicknessess of the foods I eat over a period of several weeks. Apparently if you try to eat normally too soon, you pay for it. Possible side effects include losing the ability to burp and losing the ability to vomit.

I'm really nervous about this, but since the meds aren't working I don't see that I have much of a choice in the matter. It's either do this and have my voice recover, or not do this and continue to have vocal damage. The voice specialist scoped my throat again on Monday and said that other than the swelling caused by the acid, my vocal cords were in perfect shape. That means that once they're no longer being bathed in acid all the time, they should recover.

As a singer, this is really a no-brainer. I'll have the surgery and protect my voice. I'm just scared about the whole process and everything that it will entail. This is going to be a permanent change to my anatomy, after all. I'm going to have to live with the results for the rest of my life. I'm not even 30 yet, so that is quite a long time to live with side effects if I end up with them.

On a professional level, things are looking good for this school year. It looks like my student teacher will be coming to me during the first half of the fall semester, which is perfect since I need to have the surgery. I also got a letter in the mail regarding a proposal that the PE teacher I work with and I put together for a session at this organization's big conference in December. Our proposal was accepted, so we'll be doing that in December. The only potential hurdle on a professional level for this year is our new administrative team, but I've been hearing good things so I'm hopeful.

4 more days of summer freedom, and then it's back to the grind.

There are some things I don't think I'll ever understand. A friend of mine just had a baby girl last week. Little Adalyn has a Congenital Diaphragmatic Hernia, meaning that there is a hole in her diaphragm that allowed her organs to all congregate in her chest cavity. When this happens, it stunts the growth of the baby's lungs. Ady is in the NICU awaiting surgery right now; at the hospital she's at, babies are in beds numbered from 1-50 something, with bed one being the most severely ill. Ady is in bed 3. She should be having surgery to repair her diaphragm and move her organs back to where they belong on either Monday or Tuesday, provided she's healthy enough. She's facing a very long road.

Her mom is a friend that I've known casually since college. She's close to a close friend of mine and is a teacher. We all went to dinner on Friday night and talked for a while, and then I came home and cried. She's pretty much in the exact same place I was in three years ago, and seeing her shell-shocked look and the fear in her eyes brought a lot back. It really sucks that someone else has to watch their baby go through hell. It really sucks that someone else has to wonder if she'll get to bring her baby home or not.

I don't understand it. Why this happens to parents who have babies that were planned for and eagerly anticipated is beyond me. I see these good people going through hell, and then I read news stories about people who abuse or kill their children, and it makes my head spin. Why are evil, abusive people able to have children that they subject to a lifetime of suffering? Why do innocent babies have to struggle for life while evil people have perfect health?

I hope that I was able to be of some help to Adalyn's mom. It's hard to know if the things you're saying are helping or making things worse. I hope that my experiences with Kenneth are able to help other people. It helps me to think that there was some sort of good purpose in all of the bad.

Alright, so it's been two weeks. So much for once a week updates! The highlights:

*I had my 24 hour esophageal PH test done last week and should have the results on the 9th. We'll see what the doctor has to say and whether I have to have surgery, more tests, or if I'm going to just stay on the meds.

*Our lawyer found some information that might be helpful in our lawsuit against Lennar, so he delayed filing until today so that he could get that information included in our suit papers. I don't want to go into the details on my blog, but I think it'll be a good thing for us. I have no idea how long it will take from this point to get a court date and all that good stuff. I'm going to guess that Lennar will do their best to stall things as much as possible and harass us legally however they can, but that's to be expected. If they admit that there's a problem or are forced by the courts to admit that there's a problem, the other people in the neighborhood that are having issues will then have a very good precedent already established so that they can get their homes fixed. Since the repairs are going to be in the $50,000-100,000 range, I can understand why Lennar would want to do their best to avoid honoring the warranty.

*I go back to work in a little over a week. I'm glad to get back into a routine, but I'm going to miss being home with Grant. If anyone wants to send a winning lottery ticket my way, I won't object!